"Two years ago Anna said 'no more'. She did not want any more medical intervention as she had seven years of going in and out of hospital.
Anna was born with Ring Chromosome 22 and had multiple brain tumours, which had become aggressive. The system didn't enable Anns to express her wishes through a Care Directive, as she couldn't sign or read the document - it was therefore not a legally binding document.
Anna worked alongside the team at HALC [LawRight's Health Advocacy Legal Clinic at St Vincent's Hospital] where she developed an Advance Care Plan which focused on Anna, the person, rather than Anna with a medical condition. It outlined who she was - outgoing, social butterfly, artistic, an accessories-guru and, most importantly, her likes and dislikes.
There was one page giving details of her multidisciplinary teams. It also outlined her 'end of life wishes', which clarified what was important to Anna.
She stated that she would like to be at home with family and friends, have flowers and music and go out in her car. She wanted a quality of life and no over-burdernsome treatments to keep her alive.